Webinar 1 16 September 2025

Patient and community engagement in clinical trials

13:00 - 16:00 CET

This session explored why, how, and when to meaningfully engage patients and communities across the trial lifecycle for effective clinical research. Speakers shared best practices for engagement from across the continent, highlighted successful models such as Community Advisory Boards, and unpacked how stakeholders—including industry, regulators, civil society, and researchers – can build trust and co-create research agendas.

Rewatch the sessions below. You can download the full presentation here.

Why is it important to engage patients and communities in clinical research?

13:00 - 14:30 CET
  • Moderated panel discussion
    • Moderated by Kerry Cullinan, Health Policy Watch
    • Luke Kanyangareng, Nurse
    • Tariro Makadzange, Africa Clinical Research Network
    • Norest Beta, Africa Clinical Research Network
    • Waila J. Mukulu, Science for Africa Foundation

 

  • Keynote presentation, Dr. Mosoka P. Fallah, Africa CDC

What are the enablers or best practices that can improve community and patient engagement in clinical research?

14:30 - 16:00 CET
  • Case studies: Patient advocacy group and / or community advisory board, others.
    • Joy Malongo, DNDi

  • Moderated panel discussion
    • Alun Davies, TGHN & MESH
    • Lillian Mutengu, Science for Africa Foundation on behalf of Clinical Trials Community Africa Network (CTCAN)
    • Janet Byaruhanga, Local Manufacture Initiative with AUDA-NEPAD
    • Huwaida Bulhan, Roche on behalf of IFPMA